Ryan Karlin visits NHLOA members in Chicago
On Tuesday Sept 23, NHL Officials Steven Kozari, Pierre Racicot, Michel Cormier and Dave Lewis had the opportunity to meet Ryan Karlin, his friend Trent Kenyon and father Marty Karlin before the Red Wings and Blackhawks game.
Ryan Karlin is a 12 year old boy, who lives in Naperville, Illinois. He is the youngest of 4 children and is also a 7th grader who enjoys all kinds of activities.
We found Ryan to be a very polite, quiet and a shy teenage boy, that loves the Chicago Blackhawks. Ryan had a lot of great questions and interesting facts for the crew working that night. A big thank you to you Ryan for coming to visit our room and brightening up our day, you are a very special person! You will always be a friend of the NHL officials and we will stay in touch bud.
DUCHENNE MUSCULAR DYSTROPHY (DMD)
Ryan was diagnosed with Duchenne Muscular Dystrophy on April 15, 2008. “DMD” is a genetic disease, which affects 1 in 3,500 boys and currently has no cure. It is a recessive form of muscular dystrophy. All “DMD” kids die in their late teens or early twenties. While both sexes can carry the mutation, females rarely exhibit signs of the disease. Boys experience muscle weakness and loss of ambulation usually by age of 12. Then due to progressive deterioration of muscle, loss of movement occurs, eventually leading to paralysis.
RALLY FOR RYAN FOUNDATION
Ryan has a foundation that supports and raises money for Duchenne Muscular Dystrophy (DMD).
Let’s join him in this fight at www.RallyforRyan.org
Thank you Ryan,
Your friend, Steve Kozari (NHL Referee #40)